When Emil was born, the joy was huge, as he was absolutely a desired child by his parents. He was born healthy. After a few months, however, the doctors diagnosed a spinal muscular atrophy type I - a hereditary disease, in which certain nerve cells die. This results in a degeneration of the muscles and a general weakness. Own movements are hardly possible, or only to a limited extent. A causal treatment is not possible, especially young patients have a greatly reduced life expectancy.