who is already 2.5 years old, in the summer of 2017. He suffers from a neuromuscular, incurable disease and can move very little by his own power. Last year, we provided him with a Galileo exercise machine so he could strengthen his muscles at home anytime. Now we visited him to see how he is doing. Emil is a very sensitive and warmhearted little boy, he loves to paint and to be artistically active. Meanwhile, his drawings can already fill entire folders and the results of his craft activities can be found throughout the whole apartment.
We met young Emil,
In addition, he loves to hear music, both loud and very quiet. He has a small wand that he takes as a microphone, in order to sing from heart's desire a variety of songs. Now and then he makes a joke by moving his lips to the text without a sound. Right now he has a favorite song, Emma Emmaline from Hot Chocolate, because his girlfriend in kindergarten is called Emelie. He talks about her and then smiles quietly to himself. If he goes to the kindergarten, he would like to play with his friends, but unfortunately that is not possible.
Luckily, the educators, nurses, and other kids keep reintegrating him into great fun and games over and over again. Often he is also the focus of the group what he clearly enjoys. Like most guys, he loves the fire department, the „Tatütata“ of the siren. He even noticed that when he was not feeling well and recently had to be taken to the hospital with blue light. Unfortunately, even the smallest infectious disease can easily lead to pneumonia, as it does not release the mucus; it does not cough. He is looking forward to a big fire brigade party on July 1st, to sit in a fire truck and have a ride is his biggest wish. Emil is a very special little man with great talent for languages. His mum is Swedish and his dad from Berlin, so he was used from childhood on to talk bith languages, Swedish to mom and German to his dad. Already at the age of one-and-a-half years, he was able to name colors and nuances as well as some medical terms such as stethoscope or physiotherapy. Counting - now even in English - gives him great pleasure. Language is vital to him, whether picking up toys, cleaning his nose or turning and turning at night, he can not do it alone and needs the help of his parents. It is then a relief for them that Emil clearly states what support he currently needs.
Emil smiles a lot and is very sensitive, sometimes he looks like a little wise man or a silent observer, just looks and at the right moment he makes a small but so fitting remark that everyone has to laugh. In chaotic situations, he sometimes slips out of his "Oh, my God" or after a long day at work from mom and dad, he tells everyone: "Glad you're here!". It is not surprising that the parents love Emil over everything and want to make his life as nice as possible. They are very proud of their little one, who is never angry about his diagnosis and almost always shines. Yes, he shines and you feel comfortable in his presence, a small man with a big heart and great charisma.
We are glad that we were able to make Emil's life a little easier thanks to our many donors and we wish him many reasons to laugh every day.
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